Would you like to provide an experience for Louis?
We hope to provide Louis and his family with some unforgettable experiences along the way. If you or anyone you know can help, please contact us below. We would love to hear from you.
Join the Registry
Research into Usher Syndrome is slow partly because researchers have access to far too few people with Usher Syndrome. The Usher Syndrome Coalition run a centralised registry that is gradually building up in numbers. By registering you will receive information on the latest clinical trials and treatment advances and have the opportunity to connect with others with Usher Syndrome. Should you be interested in more information and registering please click on the link below.